Ellie’s Retreat offers FREE respite breaks exclusively for families who have suffered the loss of a child.
Ellie’s Retreat is very special and unique to Ireland. We sincerely hope it helps families like ourselves find some comfort.
Ellie’s Retreat is a static mobile, located at Castle Archdale caravan park, Co Fermanagh. We provide all bed linen, towels and a small welcome pack of groceries.
If you wish further information please contact the above email or message Ellie’s Page on Facebook.
Please have a read of our journey.
Ellie was born with the very debilitating H–ABC Syndrome (Hypomylineation with atrophy of the basal ganglia and cerebellum) with secondary dystonia which is associated with the syndrome. At the time of her diagnosis she was only the 22nd person in the world identified with H–ABC. When Ellie was born she showed no symptoms of any neurological condition however as time progressed there were subtle signs that something was not right.
Thus started the journey of endless tests and on the 16th of March 2012 we were given the worst news, our whole world was shaken. Ellie had a PROGRESSIVE neurological condition. The fact that it was so rare made our journey even scarier as no one knew what to expect, the future was unknown. We began to attend endless appointments for physiotherapy, speech and language and occupational therapy. All of which Ellie attended without complaining and she worked as hard as she possibly could.
However, despite all her efforts, on the 9th of March 2016 Ellie lost her long and heroic battle. Ellie was just 8 years old.
There are no words to explain the grief after the death of your child whether expected or not. The pain and heartache felt are immense. Numbness and severe anxiety become a part of everyday life. There is a real fear of going outside the door and meeting people having no explanation for these feelings.
Ellie’s Retreat offers free respite for families who have lost a child. It offers a place to escape and have some anonymity, space and time together with the other members of the family. It will hopefully be a step forward in the healing process. Ellie’s Retreat is a safe haven for families like us, offering week or weekend breaks.
Ellie was such a brave, courageous and inspirational little girl and she touched the hearts of all those she met. We were very privileged to be her family and we now have the privilege of helping others in Ellie’s name.
We also will continue to fundraise for H–ABC research so that no other children have to suffer as Ellie did.